Tag: rest

An hour!

I’m excited that my enemy (seasonal clock changes) has been defeated, but it might be awhile before I stop being offended about getting up one hour early forever 🫩

Coma therapy wishlist

At a chronic pain seminar tonight, the OT said, “one thing we often hear is, ‘oh i wish you could just put me in a coma until my current neurons would die and be replaced with new ones that aren’t so highly reactive’, but unfortunately that isn’t how the nervous system works.”

Firstly, lol at “unfortunately”. Love this ally who wants to make coma therapy wishes come true.

Secondly, wanting a temporary coma really is a common fantasy across quite a few chronic conditions. I have personally heard it from people with pain, anxiety, depression, ME/CFS, and also just sleep-deprivation (parents).

I mean

Promo photo of the book My Year of Rest and Relaxation by Otessa Moshfegh, with pink block letters over a classical oil portrait of a woman looking bored or resigned

I am thinking about how often patients are correct in a general or metaphorical way– folks with ME who say they feel like their batteries don’t work and then research turns up mitochondrial dysfunction.

Makes me wonder what version of coma therapy will turn out to work for us all.

How to realize you need to pace

I’m forever grateful to MEAction for their Stop Rest Pace campaign that started early in the pandemic. It’s the reason I stopped trying to push through my fatigue, and realized I might have long covid. Their resources on recognizing PEM and learning to pace are honestly worth a read for everyone during these times.

And the guide they made for doctors in collab with the Mayo clinic is so smart.